Dundonald Mother Starts Fundraiser for Son's Walking Aids
A mother in Dundonald has begun a fundraiser to acquire walking aids for her seven-year-old son Jamie, who has RYR1 congenital myopathy. The condition limits mobility in his torso muscles. He uses a wheelchair daily.
Gail McGinn aims to raise £6,000 for a MyWay Lecky Pedal, equipment unavailable via NHS treatment. Funds will support his ability to move and play with peers. She plans events including an abseil down the Europa in Belfast.
Jamie plays football by crawling and enjoys park time with friends, including his older sister Faith. He expressed a wish to walk after outdoor play. Gail, a single mother on low income, faces job challenges from frequent medical appointments.
She also eyes a WCK Backpack for hikes like Cave Hill, which his wheelchair cannot manage. Longer-term, a ReWalk Exoskeleton priced at £150,000 may suit him as an adult. Donations accepted via online platform.