Haemochromatosis UK has organised recent events in Northern Ireland to test for genetic haemochromatosis (GH), including an Iron Brew Social Gathering at the ARC Healthy Living Centre on Tuesday, February 17. The four events took place in Irvinestown, Portadown, Magherafelt, and Ballymena, with previous gatherings held in Belfast, Derry, Newry, and Carrickfergus.

The charity, sponsored by Hagan Homes, is conducting blood tests for GH markers in residents of specific postcodes across these geographically distinct areas. The data will contribute to a more accurate estimate of GH prevalence in the Northern Ireland population.

Researchers aim to use this information to predict future health impacts from GH and inform the Department of Health on the potential development of a national screening programme. Haemochromatosis UK estimates an initial investment of £3 million and £1 million annually thereafter for such a programme.

GH is a genetic condition causing excessive iron absorption and storage, potentially leading to health issues such as joint pain, liver dysfunction, heart problems, diabetes, and increased cancer risk if untreated. It is estimated that 1 in 10 people in Northern Ireland may be at risk.

Treatment involves venesection to reduce iron levels, after which affected individuals can donate blood to the Blood Transfusion Service. Carriers with one GH gene are typically unaffected but may pass it to offspring.